New registry tracks Real-World impact of liver drug for rare childhood disease
NCT ID NCT07185919
First seen Sep 30, 2025 · Last updated May 21, 2026 · Updated 29 times
Summary
This study follows up to 10 people with progressive familial intrahepatic cholestasis (PFIC) who are taking odevixibat (Bylvay) as part of their regular care. Researchers will collect information on how well the drug controls symptoms like itching and jaundice, and monitor for any side effects over time. The goal is to understand the medicine's long-term safety and effectiveness in everyday use.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Pusan National University Yangsan Hospital
ACTIVE_NOT_RECRUITINGGyeongsang, South Korea
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Seoul National University Hospital
NOT_YET_RECRUITINGSeoul, South Korea
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Severance Hospital, Yonsei University Health System
RECRUITINGSeoul, South Korea
Conditions
Explore the condition pages connected to this study.