New registry tracks Real-World use of liver drug for rare childhood disease
NCT ID NCT07185919
First seen Sep 30, 2025 · Last updated May 16, 2026 · Updated 28 times
Summary
This study collects information from people with progressive familial intrahepatic cholestasis (PFIC), a rare liver disease that causes severe itching and jaundice, who are taking odevixibat (Bylvay). Researchers will track side effects and long-term outcomes like the need for surgery or liver transplant. The goal is to see how well the medicine works and how safe it is in everyday use for up to 10 participants in South Korea.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Pusan National University Yangsan Hospital
ACTIVE_NOT_RECRUITINGGyeongsang, South Korea
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Seoul National University Hospital
NOT_YET_RECRUITINGSeoul, South Korea
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Severance Hospital, Yonsei University Health System
RECRUITINGSeoul, South Korea
Conditions
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