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Pemphigus study digs into hidden emotional struggles

NCT ID NCT02237313

Knowledge-focused Sponsor: University Hospital, Rouen Source: ClinicalTrials.gov ↗

What the study statuses mean

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Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study looked at 48 adults with pemphigus, a rare blistering skin disease, to understand what makes them feel vulnerable during their illness. Researchers used interviews and questionnaires to explore factors like misdiagnosis, differences in how patients and doctors see disease severity, and how patients use health information. The goal was to identify patterns that could help improve support for patients.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this could help doctors identify which pemphigus patients need extra psychological support, leading to better overall care.
What could go wrong
This is a small, completed observational study (48 people) that only identifies factors—it does not test a treatment, so it won't directly change outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

48 people

The number who actually took part.

Started

Apr 2015

Finished

Jul 2017

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patient major * Patients with pemphigus vulgaris, diagnosed on a combination of: 1. clinical signs and 2. histological image above basal epithelial detachment with intra acantholysis, 3. direct immunofluorescence showing deposition of Immunoglobulin G and / or C3 to the surface of keratinocytes * Join a social security scheme * patient has been informed and have signed consent to participate in the study Exclusion Criteria: * Person placed under judicial protection, * Patient without liberty by administrative or judicial decision, * Patient participating in another trial for the duration of monitoring.

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Conditions

The condition(s) this trial relates to.

pemphigus pemphigus vulgaris skin disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Dermatological disease Pemphigus

Contacts and locations

Locations

  • CH du Mans

    Le Mans, 72037, France

  • CHRU de Lille Hôpital Claude Huriez

    Lille, 59037, France

  • CHU de Clermont-Ferrand Hôpital d'Estaing

    Clermont-Ferrand, 63003, France

  • Centre hospitalier de Cornouaille

    Quimper, 29107, France

  • Hôpital Avicenne

    Bobigny, 93000, France

  • Hôpital Haut-Lévêque

    Pessac, 33604, France

  • Hôpital La Timone, Assistance publique hôpitaux de Marseille-Aix

    Marseille, France

  • Hôpital Robert Debré, chu de Reims

    Reims, 51 092, France

  • University Hospital of Rouen

    Rouen, 76031, France

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