Brain tumor patients and caregivers speak out: what they really need
NCT ID NCT06676306
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 1 time
Summary
This completed study from Mayo Clinic interviewed 33 adults with brain or central nervous system (CNS) tumors, along with their caregivers, to learn about their biggest challenges and needs. The goal was to identify areas where doctors and healthcare teams can offer better support. No treatments were tested; instead, the study focused on understanding the patient and caregiver experience to improve future care.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- What this could lead to
- If successful, this could help doctors better understand what matters most to patients and caregivers, leading to more supportive care.
- What could go wrong
- This is a small, completed interview study (33 participants) that identifies priorities but does not test any treatment. Results may not apply to all patients.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Participants
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33 people
The number who actually took part.
- Started
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Apr 2024
- Finished
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Jan 2026
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
Patients with a diagnosis of primary or metastatic CNS tumor with a primary caregiver.
- Ages
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18 years and older
- Sex
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Anyone
- Healthy volunteers
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Accepted
You do not need to have the condition being studied to take part.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * \* Age ≥ 18 years. * Diagnosis of primary or metastatic CNS tumor with a primary caregiver, should patient wish to involve one. * Willing and able to participate in a semi-structured interview lasting approximately 60 minutes. Dyad interviews conducted for participants who elect to involve a caregiver. * Willing and able to participate in a single follow-up interview. Dyad follow up interviews conducted for participants who elect to involve a caregiver. Exclusion Criteria: * \* Uncontrolled and/or intercurrent illness which limits participation in study interview. * Vulnerable populations: pregnant or nursing persons, prisoners, or persons lacking capacity for understanding. * Unable to read and speak English. * Note: English does not need to be primary language.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Mayo Clinic in Rochester
Rochester, Minnesota, 55905, United States
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