New registry aims to unlock secrets of rare lung disease
NCT ID NCT02461615
First seen Apr 04, 2026 · Last updated Jun 19, 2026 · Updated 6 times
Summary
This study creates a national registry for people with Pulmonary Alveolar Proteinosis (PAP), a rare lung disease. Researchers will collect data and blood samples from up to 500 participants to improve diagnosis, understand how the disease progresses, and develop tools to measure severity. The goal is to give patients a voice in research and pave the way for future treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.