New national registry aims to unlock secrets of rare lung disease
NCT ID NCT02461615
First seen Apr 04, 2026 · Last updated Jun 16, 2026 · Updated 5 times
Summary
This study creates a national registry for people with Pulmonary Alveolar Proteinosis (PAP), a rare lung disease. The goal is to improve diagnosis, learn how the disease progresses, and give patients a voice in future research. Up to 500 participants will provide blood samples and medical history to help develop better tests and understand genetic risks.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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