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Porphyria prevention study halted early

NCT ID NCT02922413

First seen Feb 01, 2026 · Last updated Jun 02, 2026 · Updated 25 times

Summary

This study tested whether Panhematin (hemin) could safely prevent acute attacks in people with certain types of porphyria. It enrolled 13 adults with acute intermittent porphyria, hereditary coproporphyria, or variegate porphyria. Participants received either Panhematin or a placebo, and researchers tracked attacks and serious side effects. The study was terminated early, so results are limited.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • University of Texas Medical Branch

    Galveston, Texas, 77555, United States

Conditions

The condition(s) this trial relates to.

acute intermittent porphyria hereditary coproporphyria porphyria variegate porphyria

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.