Porphyria prevention study halted early

NCT ID NCT02922413

First seen Feb 01, 2026 · Last updated Jun 02, 2026 · Updated 25 times

Summary

This study tested whether Panhematin (hemin) could safely prevent acute attacks in people with certain types of porphyria. It enrolled 13 adults with acute intermittent porphyria, hereditary coproporphyria, or variegate porphyria. Participants received either Panhematin or a placebo, and researchers tracked attacks and serious side effects. The study was terminated early, so results are limited.

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Contacts and locations

Locations

  • University of Texas Medical Branch

    Galveston, Texas, 77555, United States

Conditions

Explore the condition pages connected to this study.