Scientists search for clues in rare, fatal brain disease

NCT ID NCT00344331

Recruiting now Knowledge-focused Sponsor: Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) Source: ClinicalTrials.gov ↗

Summary

This study aims to understand how Niemann-Pick Type C (NPC) disease progresses over time. Researchers are observing 900 people with NPC to identify specific tests or measurements that could be used to tell if a future treatment is working. The study involves regular check-ups, scans, and lab tests, but does not provide any treatment itself.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

National Institutes of Health Clinical Center
RECRUITING

Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.

NIEMANN-PICK DISEASE, TYPE C