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Could a simple DNA test at birth detect rare diseases? france launches major pilot study

NCT ID NCT06875089

First seen Nov 21, 2025 · Last updated May 24, 2026 · Updated 27 times

Summary

This study is testing whether it is possible and acceptable to use genome sequencing to screen newborns for rare diseases in France. Researchers will offer the test to parents of 5000 newborns across five hospitals. The goal is to see how many families agree to the screening and whether results can be delivered within four weeks. This is a first step toward potentially expanding the national newborn screening program.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • CHU Besançon

    NOT_YET_RECRUITING

    Besançon, 25000, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Dijon Bourgogne

    RECRUITING

    Dijon, 21000, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Hôtel Dieu

    NOT_YET_RECRUITING

    Nantes, 44093, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Rennes - Hôpital Sud

    NOT_YET_RECRUITING

    Rennes, 35203, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU d'Angers

    NOT_YET_RECRUITING

    Angers, 49933, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.