Simple blood test may predict rare nerve disease before symptoms start
NCT ID NCT06360289
First seen Nov 17, 2025 · Last updated May 18, 2026 · Updated 20 times
Summary
This study looks at a protein called NfL in the blood of people who carry a gene linked to a rare disease that damages nerves (hATTR amyloidosis). Researchers want to see if NfL levels can help detect when the disease starts, how it progresses, and how well treatments work. About 500 people with or without symptoms will give blood samples over time. This is an observational study, meaning no new treatment is tested.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Centre Hospitalier Universitaire (CHU) Le Kremlin-Bicêtre Assistance Publique-Hôpitaux de Paris (APHP)
RECRUITINGParis, Île-de-France Region, 94270, France
Conditions
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