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Gene editing hope for hereditary hearing loss: study recruits families

NCT ID NCT04501081

First seen Nov 14, 2025 · Last updated May 17, 2026 · Updated 27 times

Summary

This long-term study aims to understand the genes that cause a type of inherited hearing loss called autosomal dominant hearing loss (DFNA). Researchers will follow people with DFNA and their family members for up to 20 years, using hearing tests, balance tests, blood draws, and skin biopsies. The goal is to gather information that could help develop gene-editing treatments in the future.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.