Could gene editing one day restore hearing? researchers study families with inherited hearing loss

NCT ID NCT04501081

Recruiting now Knowledge-focused Sponsor: National Institute on Deafness and Other Communication Disorders (NIDCD) Source: ClinicalTrials.gov ↗

First seen Nov 14, 2025 · Last updated May 07, 2026 · Updated 26 times

Summary

This long-term study follows people with a type of inherited hearing loss (DFNA) and their family members to learn which genes cause it. Researchers will collect hearing tests, balance tests, blood samples, and skin biopsies to understand the condition better. The goal is to gather information that may help develop gene-editing treatments in the future, but this study does not offer any treatment itself.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

National Institutes of Health Clinical Center
RECRUITING

Bethesda, Maryland, 20892, United States

Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.

HEARING LOSS