Massive data hunt launched for rare bone disease
NCT ID NCT04133285
Summary
This study is creating a detailed registry to collect health information from people with Multiple Osteochondromas, a rare genetic condition causing bony growths. It aims to gather data on symptoms, treatments, genetics, and quality of life from up to 10,000 participants to better understand the disease. The information will help researchers see how the disease progresses and how genetic factors relate to a person's symptoms and outcomes.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Irccs Istituto Ortopedico Rizzoli
RECRUITINGBologna, Emilia-Romagna, 40136, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.