New registry aims to unlock secrets of rare bone disease
NCT ID NCT04133285
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study is building a large registry of people with multiple osteochondromas, a condition that causes benign bone tumors. Researchers will collect medical history, genetic data, and treatment information from up to 10,000 participants. The goal is to better understand the disease and how it changes over time.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this registry could help researchers better understand how multiple osteochondromas develops and progresses, potentially pointing toward future treatments.
- What could go wrong
- This is an observational registry, not a treatment trial, so it will not directly help participants. It may take many years to gather enough data to draw meaningful conclusions.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Irccs Istituto Ortopedico Rizzoli
RECRUITINGBologna, Emilia-Romagna, 40136, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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