Massive data hunt launched for rare bone disorder
NCT ID NCT04133285
Summary
This study is creating a detailed registry to collect health information from people with Multiple Osteochondromas, a rare genetic condition that causes bony growths. It aims to gather data on symptoms, treatments, surgeries, genetics, and quality of life to better understand the disease. The goal is to link this information to help researchers find patterns and improve future care. The registry is currently only enrolling participants who live in Italy.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Irccs Istituto Ortopedico Rizzoli
RECRUITINGBologna, Emilia-Romagna, 40136, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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