Massive italian registry aims to crack the code of rare bone tumor disorder
NCT ID NCT04133285
First seen Nov 20, 2025 · Last updated May 20, 2026 · Updated 17 times
Summary
This study is building a large registry of up to 10,000 people with multiple osteochondromas, a rare condition that causes benign bone tumors. Researchers will collect medical history, genetic data, imaging, and quality-of-life information to better understand how the disease progresses and how it runs in families. The goal is to improve care and guide future research, but there is no direct treatment or cure being tested. Currently, only people living in Italy can join.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Irccs Istituto Ortopedico Rizzoli
RECRUITINGBologna, Emilia-Romagna, 40136, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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