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New pill may let rare disease patients enjoy sunshine longer

NCT ID NCT03520036

First seen Jan 04, 2026 · Last updated May 24, 2026 · Updated 20 times

Summary

This study tested an experimental drug called MT-7117 in 102 adults with erythropoietic protoporphyria (EPP), a rare condition that causes severe pain from sunlight exposure. The goal was to see if the drug could increase the time people could spend in the sun without symptoms. Participants took either the drug or a placebo for 16 weeks, and researchers measured how long they could stay in sunlight before feeling pain.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • ACTCA, A Member of the Alliance, Inc.

    Los Angeles, California, 90036, United States

  • Ichan School of Medicine at Mount Sinai

    New York, New York, 10029, United States

  • Metro Boston Clinical Partners, LLC

    Brighton, Massachusetts, 02135, United States

  • Remington-Davis, Inc

    Columbus, Ohio, 43215, United States

  • University of California at San Francisco

    San Francisco, California, 94143, United States

  • University of Miami Miller School of Medicine

    Miami, Florida, 33136, United States

  • University of Texas Medical Branch Porphyria Center

    Galveston, Texas, 77555, United States

  • University of Utah

    Salt Lake City, Utah, 84108, United States

  • Wake Forest Baptist Medical Center

    Winston-Salem, North Carolina, 27157, United States

Conditions

Explore the condition pages connected to this study.