New drug could let EPP patients enjoy the sun longer
NCT ID NCT03520036
First seen Jan 04, 2026 · Last updated May 16, 2026 · Updated 18 times
Summary
This study tested an experimental drug called MT-7117 in 102 adults with erythropoietic protoporphyria (EPP), a rare condition that causes severe pain from sunlight exposure. The goal was to see if the drug could increase the time people could spend in the sun without symptoms. Participants were randomly assigned to receive either the drug or a placebo, and their sun tolerance was measured over 16 weeks.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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ACTCA, A Member of the Alliance, Inc.
Los Angeles, California, 90036, United States
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Ichan School of Medicine at Mount Sinai
New York, New York, 10029, United States
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Metro Boston Clinical Partners, LLC
Brighton, Massachusetts, 02135, United States
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Remington-Davis, Inc
Columbus, Ohio, 43215, United States
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University of California at San Francisco
San Francisco, California, 94143, United States
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University of Miami Miller School of Medicine
Miami, Florida, 33136, United States
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University of Texas Medical Branch Porphyria Center
Galveston, Texas, 77555, United States
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University of Utah
Salt Lake City, Utah, 84108, United States
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Wake Forest Baptist Medical Center
Winston-Salem, North Carolina, 27157, United States
Conditions
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