New study aims to track rare bone disease without surgery
NCT ID NCT05284006
First seen May 14, 2026 · Last updated May 20, 2026 · Updated 3 times
Summary
This study is for people with Morquio A, a rare disease that affects bones and breathing. Researchers will use safe, non-invasive tests like X-rays, MRI, and breathing tests to track how the disease changes over time. The goal is to better understand the disease and find better ways to measure it in future treatment studies.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Nemours Children's Health, Delaware Valley
RECRUITINGWilmington, Delaware, 19803, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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