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Simple tests may help doctors decide when to operate on kids with bone tumors

NCT ID NCT06703736

Knowledge-focused Sponsor: Istituto Ortopedico Rizzoli Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks at how multiple osteochondromas (non-cancerous bone growths) affect movement and body shape in children and adults. Researchers will use wearable sensors, pressure mats, and 3D body scans to measure walking, balance, and joint motion. The goal is to find simple ways to track the disease and help decide the best time for surgery, improving patients' quality of life.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 60 people

The number the study aims to enrol. It can still change while the study runs.

Started

May 2025

Expected to finish

Dec 2026

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

The multiple osteochondromas population is selected from patients taken over by CeMaRS (Centre of Rare Skeletal Disorders) of Istituto Ortopedico Rizzoli (IOR), while the healthy population is recruit via social and IOR website, possibly including healthy relatives of recruited patients if the absence of the causative genetic variant of the disease and the absence of its clinical manifestations are proven.

Ages

6 to 40 years

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: For multiple osteochondromas cohort inclusion criteria are: * clinical and/or molecular diagnosis of Multiple Osteochondromas; * male and female subjects; * age minors: 6-17 years at enrollment and adult age: 18-40 years at enrollment; * collection of appropriate informed consent; * ability to walk a linear path without aids; * presence of multiple osteochondromas localized at lower limbs; * ability to undergo all procedures required by the protocol. For healthy cohort inclusion criteria are: * absence of neuro-muskuloskeletal or other limb-limiting conditions in the lower limbs; * male and female subjects; * age minors: 6-17 years at enrollment and adult age: 18-40 years at enrollment; * collection of appropriate informed consent; * ability to undergo all procedures required by the protocol. Exclusion Criteria: * Persons who do not fit the inclusion criteria; * Any reason which, in the opinion of the investigator, would result in the inability of the participant to comply with the protocol. * BMI equal to or greater than 30.

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Conditions

The condition(s) this trial relates to.

hereditary multiple osteochondromas

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Hereditary multiple osteochondromas

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    1 site. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • IRCCS Istituto Ortopedico Rizzoli

    RECRUITING

    Bologna, 40136, Italy