What keeps marfan patients from being active? new study aims to find out
NCT ID NCT07419386
First seen Feb 22, 2026 · Last updated May 22, 2026 · Updated 12 times
Summary
This study will measure how active adults with Marfan syndrome are and explore what clinical and emotional factors—like fear of injury, fatigue, or pain—may limit their activity. Researchers will survey 118 adults using online questionnaires. The goal is to better understand why many patients are less active, not to test a treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Universidad de Oviedo
Oviedo, Principality of Asturias, 33006, Spain
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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