Massive lupus registry launches to unlock secrets of the disease
NCT ID NCT05934149
First seen Apr 20, 2026 · Last updated Jun 22, 2026 · Updated 9 times
Summary
This study is building a large registry and biorepository of 3,500 adults with systemic lupus erythematosus (SLE), including those with lupus nephritis and neuropsychiatric lupus. Participants will provide clinical data and biospecimens over time, creating a resource for future research to identify genetic drivers, understand disease mechanisms, and link biomarkers to treatment responses. The goal is to accelerate discoveries that could improve diagnosis and care for lupus patients.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Locations
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Brigham and Women's Hospital
RECRUITINGBoston, Massachusetts, 02115, United States
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CHU de Québec - Université Laval
RECRUITINGQuébec, Quebec, G1R 2J6, Canada
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Columbia University Medical Center
NOT_YET_RECRUITINGNew York, New York, 10032, United States
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Emory University
RECRUITINGAtlanta, Georgia, 30322, United States
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Georgetown University
NOT_YET_RECRUITINGWashington D.C., District of Columbia, 20057, United States
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McGill University Health Centre
RECRUITINGMontreal, Quebec, H3H 2R9, Canada
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Northwell Health
RECRUITINGNew York, New York, 11021, United States
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SUNY Upstate
RECRUITINGSyracuse, New York, 13210, United States
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The Feinstein Institutes for Medical Research
RECRUITINGManhasset, New York, 11030, United States
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The MetroHealth System
RECRUITINGCleveland, Ohio, 44109, United States
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UCLA
NOT_YET_RECRUITINGLos Angeles, California, 90024, United States
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UNC Chapel Hill
RECRUITINGChapel Hill, North Carolina, 27599, United States
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UT Southwestern Medical Center
RECRUITINGDallas, Texas, 75390, United States
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University Health Network/Toronto Western Hospital
RECRUITINGToronto, Ontario, M5G 2C4, Canada
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University of Alabama at Birmingham
RECRUITINGBirmingham, Alabama, 35205, United States
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University of Alberta Hospital
RECRUITINGEdmonton, Alberta, AB T6G 2X8, Canada
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University of Arizona
RECRUITINGTucson, Arizona, 85714, United States
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University of Calgary
RECRUITINGCalgary, Alberta, T2N 1N4, Canada
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University of Chicago
RECRUITINGChicago, Illinois, 60637, United States
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University of Manitoba
RECRUITINGWinnipeg, Manitoba, Canada
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University of Massachusetts Memorial Health
RECRUITINGWorcester, Massachusetts, 01605, United States
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University of Miami
RECRUITINGMiami, Florida, 33146, United States
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Vanderbilt University Medical Center
RECRUITINGNashville, Tennessee, 37232, United States
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Wallace Rheumatic Studies Center
RECRUITINGBeverly Hills, California, 90210, United States
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Washington University
RECRUITINGSt Louis, Missouri, 63130, United States
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What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry will provide a rich resource for researchers to discover genetic and biological markers, potentially leading to better treatments and personalized care for lupus.
What could go wrong
This is an observational study, not a treatment trial. It will not directly test any new therapy, and its value depends on future research using the collected data and samples.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.