Researchers launch major study to better measure muscle disease progression
NCT ID NCT05989620
First seen Nov 18, 2025 · Last updated May 25, 2026 · Updated 23 times
Summary
This 24-month study follows up to 1000 people with limb girdle muscular dystrophy, myotonic dystrophy type 2, or late-onset Pompe disease. Researchers will test simple physical tasks like walking and timed tests to see which measurements best track disease changes over time. The goal is to develop better tools for future clinical trials, not to provide a treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Virginia Commonwealth University
RECRUITINGRichmond, Virginia, 23298, United States
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