Sickle cell Patients' pandemic struggles revealed in new survey
NCT ID NCT04417673
First seen Feb 02, 2026 · Last updated May 23, 2026 · Updated 21 times
Summary
This study surveyed 186 adults with sickle cell disease (SCD) in the U.S. to learn how the COVID-19 pandemic impacted their stress, anxiety, pain, sleep, and healthcare use. Participants completed online questionnaires about their medical history, mental and physical health, and experiences during the pandemic. The goal was to gather information to better support this community in future health crises.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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National Human Genome Research Institute (NHGRI)
Bethesda, Maryland, 20892, United States
Conditions
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