New registry aims to unlock secrets of rare lung condition in kids

This study is a registry that collects information from children and teens diagnosed with pulmonary hypertension (high blood pressure in the lungs). Researchers will follow their health over time to see how the disease progresses, how treatments work, and what affects long-term outcomes. No new treatments are given—participants receive standard care from their own doctors. The goal is to gather real-world data to improve future care for children with this condition.