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New registry aims to unlock secrets of rare breast cancer

NCT ID NCT00477100

Knowledge-focused Sponsor: M.D. Anderson Cancer Center Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study creates a registry for people with inflammatory breast cancer, a rare and aggressive form of the disease. Researchers will collect blood, tissue, and stool samples along with medical information from up to 1,200 participants. The goal is to build a resource for future research that may lead to better understanding and treatment of this cancer.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this registry could help researchers discover new ways to diagnose or treat inflammatory breast cancer in the future.
What could go wrong
This is an observational registry, not a treatment trial. It collects data and samples for future studies, so there is no direct benefit to participants. Results may take years to lead to any practical advances.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,200 people

The number the study aims to enrol. It can still change while the study runs.

Started

Apr 2007

Expected to finish

Apr 2030

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Participants with inflammatory or invasive breast cancer

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patients with clinical diagnosis of primary inflammatory breast cancer (IBC), second primary IBC, or highly suspicious for IBC (MD Anderson patients only). * Histological diagnosis of invasive breast cancer, or highly suspicious for IBC (MD Anderson patients only) but pending breast cancer diagnosis. * Be either newly diagnosed, or highly suspicious for IBC (MD Anderson patients only) \[Cohort I\] or have paraffin blocks or up to 20 unstained slides of each representative block(s) from the time of initial diagnosis of IBC(i.e. core biopsy and punch biopsy) and/or from mastectomy (Cohort II-MD Anderson patients only) * Age \> 18 years * Able to provide informed consent Exclusion Criteria:

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Conditions

The condition(s) this trial relates to.

inflammatory breast carcinoma invasive breast carcinoma Neoplasms, Second Primary secondary malignant neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Inflammatory breast carcinoma Invasive breast carcinoma Second primary malignant neoplasm

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    8 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Banner - MD Anderson Cancer Center

    RECRUITING

    Gilbert, Arizona, 85234, United States

  • Banner - MD Anderson Cancer Center - Northern Colorado

    RECRUITING

    Greeley, Colorado, 80631, United States

  • Baptist - MD Anderson Cancer Center

    RECRUITING

    Jacksonville, Florida, 32207, United States

  • Covenant Medical Center

    ACTIVE_NOT_RECRUITING

    Saginaw, Michigan, 48604, United States

  • M D Anderson Cancer Center

    RECRUITING

    Houston, Texas, 77030, United States

  • MD Anderson League City

    RECRUITING

    Nassau Bay, Texas, 77058, United States

  • MD Anderson in Katy

    RECRUITING

    Houston, Texas, 77094, United States

  • MD Anderson in Sugar Land

    RECRUITING

    Sugar Land, Texas, 77478, United States

  • MD Anderson in The Woodlands

    RECRUITING

    The Woodlands, Texas, 77384, United States

  • Scripps - MD Anderson Cancer Center

    ACTIVE_NOT_RECRUITING

    La Jolla, California, 92037, United States

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