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New shot could help teens with rare high cholesterol disease

NCT ID NCT04659863

First seen Nov 01, 2025 · Last updated May 20, 2026 · Updated 31 times

Summary

This study tested a drug called inclisiran in teenagers aged 12 to 18 with a rare genetic condition that causes very high cholesterol. The goal was to see if the drug is safe and can lower bad cholesterol levels. Participants received either inclisiran or a placebo for one year, then everyone received inclisiran for a second year.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • American University of Beirut Medical Center

    Beirut, 1107 2020, Lebanon

  • Excel Medical Clinical Trials LLC

    Boca Raton, Florida, 33434, United States

  • Hotel Dieu de France Hospital

    El Achrafiyé, 166830, Lebanon

  • Metropolitan Hospital

    Athens, 18547, Greece

  • Novartis Investigative Site

    Québec, Quebec, G1V 4W2, Canada

  • Novartis Investigative Site

    Bron, 69677, France

  • Novartis Investigative Site

    Kuala Lumpur, 59100, Malaysia

  • Novartis Investigative Site

    Amsterdam, 1105 AZ, Netherlands

  • Novartis Investigative Site

    Istanbul, TUR, 34098, Turkey (Türkiye)

  • Novartis Investigative Site

    Izmir, 35100, Turkey (Türkiye)

  • University General Hospital of Ioannina

    Ioannina, GR, 455 00, Greece

Conditions

Explore the condition pages connected to this study.