New drug shows promise for teens with rare, severe high cholesterol

NCT ID NCT04659863

First seen Nov 01, 2025 · Last updated May 17, 2026 · Updated 30 times

Summary

This study tested a drug called inclisiran in teenagers aged 12 to 18 with a rare genetic condition that causes extremely high cholesterol (homozygous familial hypercholesterolemia). The goal was to see if the drug is safe and effective at lowering LDL ("bad") cholesterol when added to their current treatments. The study involved 13 participants and compared inclisiran to a placebo for one year, followed by an open-label phase.

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Contacts and locations

Locations

  • American University of Beirut Medical Center

    Beirut, 1107 2020, Lebanon

  • Excel Medical Clinical Trials LLC

    Boca Raton, Florida, 33434, United States

  • Hotel Dieu de France Hospital

    El Achrafiyé, 166830, Lebanon

  • Metropolitan Hospital

    Athens, 18547, Greece

  • Novartis Investigative Site

    Québec, Quebec, G1V 4W2, Canada

  • Novartis Investigative Site

    Bron, 69677, France

  • Novartis Investigative Site

    Kuala Lumpur, 59100, Malaysia

  • Novartis Investigative Site

    Amsterdam, 1105 AZ, Netherlands

  • Novartis Investigative Site

    Istanbul, TUR, 34098, Turkey (Türkiye)

  • Novartis Investigative Site

    Izmir, 35100, Turkey (Türkiye)

  • University General Hospital of Ioannina

    Ioannina, GR, 455 00, Greece

Conditions

Explore the condition pages connected to this study.