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New study tests two ways to empower parents of kids with intellectual disabilities

NCT ID NCT05986305

Knowledge-focused Sponsor: University of North Carolina, Chapel Hill Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing This study
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study compares two programs for parents of teens and young adults (ages 11-27) with intellectual or developmental disabilities. One program teaches parents how to advocate for their child's health, while the other connects them with other parents for shared learning. Researchers want to see which approach helps parents feel more confident and improves health outcomes for both parents and youth.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

406 people

The number who actually took part.

Started

Aug 2023

Expected to finish

Jun 2026

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

11 to 27 years

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: Parents * Raising an adolescent or young adult child (age 11-27), with diagnosed or suspected intellectual or developmental disability * Able to attend group sessions * Able to give informed consent * Resident of any state except New York or Illinois due to electronic signature law Youth * Being between the ages of 11 and 27 * Having diagnosed or suspected intellectual or developmental disability Exclusion Criteria: Parents • Having evidence of emergency mental health needs

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Conditions

The condition(s) this trial relates to.

developmental disability intellectual disability

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Intellectual disability

Contacts and locations

Locations

  • The Carolina Institute for Developmental Disabilities

    Carrboro, North Carolina, 27510, United States

  • UNC Adult Psychiatry Clinic

    Chapel Hill, North Carolina, 27514, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.