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Can better talks help kids with cancer have a gentler end of life?

NCT ID NCT04330833

Knowledge-focused Sponsor: Indiana University Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested a special communication program for doctors and parents of children with advanced cancer. The goal was to help families and doctors agree on treatment goals, especially for children nearing end of life. Researchers measured whether this improved the child's quality of life and hospice use. The study involved 111 families and was completed at Indiana University.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

111 people

The number who actually took part.

Started

Dec 2020

Finished

Jul 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

1 month to 17 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Child 1 month to \< 18 years * Child newly diagnosed, i.e., within 16 weeks (112 days) from time of diagnosis of cancer not including the day of diagnosis, OR * Child with relapsed cancer, defined as within 16 weeks (112 days) of first-time relapse/evidence of progression of disease as noted by scan or biopsy after previous diagnosis of cancer. * Child provide assent if age ≥ 7 years * Poor prognosis, i.e., approximate \< 25 % estimated overall survival or at the discretion of the attending AND/OR: * Falls into one of the following diagnosis categories, including but not limited to: * Atypical teratoid rhabdoid tumor * Glioblastoma multiforme * Diffuse intrinsic brainstem glioma * Embryonal tumors with multilayered rosettes * Other high-grade glioma * Gliomatosis cerebri * Metastatic osteosarcoma * Metastatic Ewing sarcoma * Metastatic rhabdomyosarcoma * Metastatic desmoplastic small round cell tumor (DSRCT) * Other metastatic sarcoma/carcinoma-at discretion of attending * Metastatic unknown primary- or rare pathology- at discretion of attending * Parent(s) legal decision-maker(s) for child * Parent(s) ≥18 years of age * Parent (s) Informed of child's cancer diagnosis * Parent(s) Able to read, speak and understand English * Must be willing to be audio recorded during all study sessions. Exclusion Criteria: * The parent has neurological/cognitive impairments likely to interfere with study participation; * The child ≥ 7 years of age does not provide assent * Parent refuses to be audio recorded during sessions.

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Conditions

The condition(s) this trial relates to.

Communication Death metastatic malignant neoplasm Neoplasm Metastasis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Cancer metastatic Communication End of life

Contacts and locations

Locations

  • Cardinal Glennon Children's Hospital

    St Louis, Missouri, 63104, United States

  • Children's Healthcare of Atlanta

    Atlanta, Georgia, 30322, United States

  • Children's Hospital Colorado

    Aurora, Colorado, 80045, United States

  • Children's Hospital of Wisconsin

    Milwaukee, Wisconsin, 53226, United States

  • MD Anderson Children's Cancer Center

    Houston, Texas, 77030, United States

  • Nemours Children's Health

    Wilmington, Delaware, 19803, United States

  • Riley Hospital for Children at IU Health

    Indianapolis, Indiana, 46202, United States

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