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New guide aims to end caregiver confusion for Alzheimer's patients

NCT ID NCT07227558

Knowledge-focused Sponsor: Johns Hopkins Bloomberg School of Public Health Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Aug 13, 2026 · Updated 3 times

Summary

This study tests a simple guide called GRACE that helps family caregivers and home care aides share information and clarify their roles when caring for someone with Alzheimer's disease. About 100 caregivers and aides will use the guide and report how helpful it is. The goal is to see if this approach improves communication, reduces stress, and makes care more consistent.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
GRACE (Guide for Role Awareness and Care Engagement) - a role and preference guide
What this could lead to
If this guide works, it could improve teamwork between family and paid caregivers, making care more consistent and less stressful for everyone involved.
What could go wrong
This is a small, early feasibility study with only 100 participants, so results may not apply broadly. The guide may not change caregiver communication or outcomes significantly.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

About 100 people

The number the study aims to enrol. It can still change while the study runs.

Started

Apr 2026

Expected to finish

Dec 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: 1. Home care agency aide: * English speaking, * home care aides, personal care aides, or personal care aides, providing services to older adults with ADRD. 2. Family or unpaid caregiver eligible for the study if: * 18 years and older * English speaking * hear well enough to communicate by telephone * identify themselves as the primary family member or unpaid (friend/companion) caregiver Exclusion Criteria: 1. Home care aides are ineligible if: * non-English speaking * certified nursing assistants, nursing assistant, home health aides, or medication technicians. 2. Family/unpaid caregivers ineligible if: * less than 18 years old * non-English speaking * do not hear well enough to communicate by telephone * two or more incorrect answers or not being able to respond to a validated 6-item telephone screening instrument * are not identified as the person's primary caregiver, or are paid for services.

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As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Shared care

How to take part

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  1. The places running it

    1 site. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

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Contacts and locations

Locations

  • Johns Hopkins University

    RECRUITING

    Baltimore, Maryland, 21205, United States