Scientists track rare muscle disease over two years
NCT ID NCT05046821
Summary
This study aims to better understand how a rare muscle-wasting disease called sporadic inclusion body myositis (sIBM) progresses over time. Researchers will observe 150 adults with sIBM for two years, tracking their physical function, strength, and breathing. The goal is to learn more about the disease's natural course and identify blood or muscle markers that might predict its severity.
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Contacts and locations
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Locations
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Brigham and Women's Hospital
Boston, Massachusetts, 02115, United States
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Johns Hopkins University
Baltimore, Maryland, 21287, United States
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Kansas University Medical Center
Fairway, Kansas, 66205, United States
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Nerve and Muscle Center of Texas
Houston, Texas, 77030, United States
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Ohio State University
Columbus, Ohio, 43221, United States
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Oregon Health & Science University
Portland, Oregon, 97239, United States
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University of California, Irvine
Orange, California, 92868, United States
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University of California, Los Angeles
Los Angeles, California, 90095, United States
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University of Colorado
Aurora, Colorado, 80045, United States
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University of Miami
Miami, Florida, 33136, United States
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University of Pennsylvania
Philadelphia, Pennsylvania, 19104, United States
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University of Washington
Seattle, Washington, 98195, United States
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Washington University in St. Louis
St Louis, Missouri, 63110, United States
Conditions
Explore the condition pages connected to this study.