New online therapy aims to boost daily skills in genetic syndrome patients
NCT ID NCT07563218
First seen May 08, 2026 · Last updated Jun 22, 2026 · Updated 8 times
Summary
This study tests a web-based program called I-TOPS that helps adolescents and young adults with genetic syndromes improve problem-solving, organization, and social skills. Participants and a parent or caregiver complete online modules and video sessions with a therapist. The goal is to see if this family-centered approach can enhance adaptive functioning and quality of life.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Scientific Institute, IRCCS E. Medea, Bosisio Parini, Lecco, Italy
RECRUITINGBosisio Parini, Lecco, 23842, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
I-TOPS online problem-solving program
What this could lead to
If it works, this could provide an accessible, home-based therapy to help people with genetic syndromes improve planning, social skills, and emotional control.
What could go wrong
This is a small, early-stage trial with only 42 participants, so results may not apply to everyone. The intervention is behavioral, not a drug, so benefits may be modest.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.