Lifeline for hunter syndrome patients: continued access to investigational therapy
NCT ID NCT05795361
First seen Apr 21, 2026 · Last updated May 23, 2026 · Updated 6 times
Summary
This program offers ongoing access to idursulfase-IT (TAK-609) for children and adults with Hunter syndrome who have cognitive impairment and completed earlier clinical trials. Participants receive the drug directly into the spinal fluid alongside their regular intravenous enzyme therapy. The goal is to maintain any benefits seen in prior studies while monitoring safety.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for HUNTER SYNDROME are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Ann and Robert H Lurie Childrens Hospital of Chicago
AVAILABLEChicago, Illinois, 60611, United States
Contact
Contact Email: •••••@•••••
-
Board of Regents of the University of Nebraska
AVAILABLEOmaha, Nebraska, 68198-5450, United States
Contact Email: •••••@•••••
Contact
-
Division of Medical Genetics, University of Utah
AVAILABLESalt Lake City, Utah, 84112, United States
Contact
Contact Email: •••••@•••••
-
H.C.U. de Valladolid
AVAILABLEValladolid, 47003, Mexico
Contact
Contact Email: •••••@•••••
-
Hospital Universitario Reina Sofia
AVAILABLECórdoba, 14004, Spain
Contact
Contact Email: •••••@•••••
-
Instituto Nacional de Pediatria
AVAILABLECoyoacán, Mexico City, 4530, Mexico
Contact
Contact Email: •••••@•••••
-
Jackson Memorial Hospital University of Miami
AVAILABLEMiami, Florida, 33101, United States
Contact Email: •••••@•••••
Contact
-
Joseph M. Sanzari Children's Hospital
AVAILABLEHackensack, New Jersey, 07601, United States
Contact
Contact Email: •••••@•••••
-
NYU Langone Medical Center
AVAILABLENew York, New York, 10017, United States
Contact
Contact Email: •••••@•••••
-
Phoenix Childrens Hospital
AVAILABLEPhoenix, Arizona, 85015, United States
Contact
Contact Email: •••••@•••••
-
Queensland Childrens Hospital
AVAILABLESouth Brisbane, Queensland, QLD 4101, Australia
Contact
Contact Email: •••••@•••••
-
Randall Children's Hospital at Legacy Emanuel
AVAILABLEPortland, Oregon, 97227, United States
Contact
Contact Email: •••••@•••••
-
Royal Manchester Children's Hospital - PPDS
AVAILABLEManchester, M13 9WL, United Kingdom
Contact
Contact Email: •••••@•••••
-
Seattle Children's Hospital - PIN
AVAILABLESeattle, Washington, 98105, United States
Contact
Contact Email: •••••@•••••
-
The Children's Hospital of Philadelphia
AVAILABLEPhiladelphia, Pennsylvania, 19104, United States
Contact
Contact Email: •••••@•••••
-
The Cleveland Clinic Foundation
AVAILABLECleveland, Ohio, 44195, United States
Contact
Contact Email: •••••@•••••
-
The Nemours Foundation
AVAILABLEWilmington, Delaware, 19803, United States
Contact
Contact Email: •••••@•••••
-
The Regents of the University of California
AVAILABLEOakland, California, 94609, United States
Contact
Contact Email: •••••@•••••
-
The University of North Carolina
AVAILABLEChapel Hill, North Carolina, 27514, United States
Contact
Contact Email: •••••@•••••
-
UPMC Childrens Hospital of Pittsburgh
AVAILABLEPittsburgh, Pennsylvania, 15224, United States
Contact
Contact Email: •••••@•••••
-
Vanderbilt Children's Hospital
AVAILABLENashville, Tennessee, 37232-7610, United States
Contact
Contact Email: •••••@•••••
-
Washington University
AVAILABLEWashington, Missouri, 63130, United States
Contact
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.