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Real-World jivi study tracks bleeds and satisfaction

NCT ID NCT03932201

First seen Oct 31, 2025 · Last updated May 24, 2026 · Updated 28 times

Summary

This study watches how Jivi (damoctocog alfa pegol) is used in routine care for people with hemophilia A. It tracks how many bleeds occur, any side effects, and how satisfied patients and doctors are with the treatment. About 371 people who have used Jivi before are taking part, but no new medicine is being tested.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Banner MD Anderson Cancer Center

    Phoenix, Arizona, 85012, United States

  • East Carolina University - Brody School of Medicine

    Greenville, North Carolina, 27834, United States

  • Georgetown University

    Washington D.C., District of Columbia, 20007, United States

  • Many locations

    Multiple Locations, Belgium

  • Many locations

    Multiple Locations, Brazil

  • Many locations

    Multiple Locations, Canada

  • Many locations

    Multiple Locations, Colombia

  • Many locations

    Multiple Locations, Denmark

  • Many locations

    Multiple Locations, Germany

  • Many locations

    Multiple Locations, Greece

  • Many locations

    Multiple Locations, Italy

  • Many locations

    Multiple Locations, Japan

  • Many locations

    Multiple Locations, Kuwait

  • Many locations

    Multiple Locations, Netherlands

  • Many locations

    Multiple Locations, Norway

  • Many locations

    Multiple Locations, Saudi Arabia

  • Many locations

    Multiple Locations, Slovenia

  • Many locations

    Multiple Locations, Spain

  • Many locations

    Multiple Locations, Sweden

  • Many locations

    Multiple Locations, Switzerland

  • Many locations

    Multiple Locations, Taiwan

  • Many locations

    Multiple Locations, United Arab Emirates

  • Orthopaedic Hospital DBA Orthopaedic Institute for Children

    Los Angeles, California, 90007, United States

  • Regents of University of Minnesota

    Minneapolis, Minnesota, 55454, United States

  • South Alabama Medical Science Foundation

    Mobile, Alabama, 36688, United States

  • The Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders

    Orange, California, 92868, United States

  • Tulane University

    New Orleans, Louisiana, 70112, United States

  • University California Davis

    Davis, California, 95616, United States

  • University of Colorado Hemophilia and Thrombosis Center

    Aurora, Colorado, 80045, United States

Conditions

Explore the condition pages connected to this study.