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Large study maps genetic roots of frontotemporal dementia

NCT ID NCT05075187

First seen Apr 23, 2026 · Last updated Apr 30, 2026 · Updated 2 times

Summary

This study examined over 2,200 people with or suspected of having frontotemporal dementia (FTD) to find out how many cases are linked to specific genes. Researchers collected genetic samples and medical information to better understand the inherited causes of this rare brain disorder. The goal was to improve knowledge, not to test a treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • AGZ of Charite Universitätsmedizin Berlin

    Berlin, 12200, Germany

  • AZ Damiaan

    Ostend, West Flanders, 8400, Belgium

  • Asklepios Klinik Nord - Ochsenzoll

    Hamburg, 22419, Germany

  • Azienda Ospedaliera Universitaria Federico II di Napoli

    Naples, 80131, Italy

  • Azienda Ospedaliero-Universitaria di Parma

    Parma, 43126, Italy

  • Azienda USL-IRCCS of Reggio Emilia

    Reggio Emilia, 42121, Italy

  • Baskent University

    Ankara, 06100, Turkey (Türkiye)

  • Bezmialem Vakif University

    Istanbul, 34093, Turkey (Türkiye)

  • CHU de Liege

    Liège, 4000, Belgium

  • CNS - campus neurológico Torres Vedras

    Torres Vedras, 2560-280, Portugal

  • Clinica Universidad de Navarra

    Pamplona, 31008, Spain

  • Gertrudis Klinik

    Leun, Hesse, 35638, Germany

  • Hacettepe University

    Ankara, 06100, Turkey (Türkiye)

  • Hanau Hospital

    Hanau, Hesse, 63450, Germany

  • Hochtaunus-Kliniken gGmbH

    Bad Homburg, 61352, Germany

  • Hospital Beatriz Ângelo

    Loures, 2674-514, Portugal

  • Hospital Clinico San Carlos

    Madrid, 28040, Spain

  • Hospital Garcia de Orta

    Almada, 2805-267, Portugal

  • Hospital Pedro Hispano

    Matosinhos Municipality, 4464-513, Portugal

  • Hospital Universitari vall D´hebron

    Barcelona, 08035, Spain

  • Hospital Universitario 12 de Octubre

    Madrid, 28041, Spain

  • Hospital da Senhora da Oliveira Guimaraes

    Guimarães, 4835-044, Portugal

  • Istanbul University

    Istanbul, 34080, Turkey (Türkiye)

  • Izmir Economy University Medikalpark Hospital

    Izmir, 35575, Turkey (Türkiye)

  • Koç University Hospital

    Istanbul, 34010, Turkey (Türkiye)

  • Marqués de Valdecilla University Hospital

    Santander, 39011, Spain

  • Mediterraneo Hospital

    Athens, 16675, Greece

  • RWTH Aachen University

    Aachen, 52074, Germany

  • Unidade Psiquiatrica Privada de Coimbra

    Coimbra, 3000-606, Portugal

  • Universitary Hospital La Princesa

    Madrid, 28006, Spain

  • University Hospital Cologne

    Cologne, 50937, Germany

  • University Hospital Dresden

    Dresden, Saxony, 01307, Germany

  • University Hospital Rostock

    Rostock, 18057, Germany

  • University Medical Center Hamburg Eppendorf

    Hamburg, Schleswig-Holstein, 20246, Germany

  • University of Ioannina

    Ioannina, 45110, Greece

  • University of Lübeck

    Lübeck, Schleswig-Holstein, 23562, Germany

  • Università degli studi Gabriele D'Annunzio Chieti-Pescara

    Chieti, 66100, Italy

Conditions

Explore the condition pages connected to this study.