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Can exercise be safe for FMD patients? new survey seeks answers

NCT ID NCT07529691

Knowledge-focused Sponsor: Vanderbilt University Medical Center Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 26, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is a large national survey of 2,000 people with fibromuscular dysplasia (FMD), a rare artery disease that can cause strokes or heart attacks. Researchers want to understand what physical activity restrictions doctors recommend and how those restrictions affect patients' quality of life and emotional well-being. The goal is to gather information that could lead to better, more consistent activity guidelines for FMD patients.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this survey could provide the first evidence to guide safe physical activity recommendations for people with FMD, potentially improving their quality of life.
What could go wrong
This is an observational survey, not a treatment trial. It will gather opinions and self-reported data, which may not reflect objective medical outcomes or lead directly to new guidelines.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 2,000 people

The number the study aims to enrol. It can still change while the study runs.

Started

Apr 2026

Expected to finish

Jun 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Individuals with a diagnosis of fibromuscular dysplasia

Ages

18 to 100 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion criteria: * Participants with a diagnosis of fibromuscular dysplasia * Age range = 18-100 years Exclusion Criteria: * Subjects who have an inability to complete the electronic consent form or electronic survey for any reason * Subjects who are non-English speaking who cannot read the electronic consent form or electronic survey

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Conditions

The condition(s) this trial relates to.

fibromuscular dysplasia idiopathic spontaneous coronary artery dissection Motor Activity

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Fibromuscular dysplasia Fibromuscular dysplasia of arteries Spontaneous coronary artery dissection

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    1 site. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Vanderbilt University Medical Center

    RECRUITING

    Nashville, Tennessee, 37232, United States

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