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Study tracks financial stress in families fighting childhood leukemia

NCT ID NCT04928599

Knowledge-focused Sponsor: Children's Oncology Group Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing This study
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study looks at how worried parents are about money while their child is being treated for acute lymphoblastic leukemia. Researchers will survey 100 parents over time to see how financial distress changes and what factors make it better or worse. The goal is to gather information that could help design future programs to ease this burden.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this study could point toward ways to reduce financial stress for families of children with leukemia.
What could go wrong
This is an observational study, not a treatment trial. It only measures distress and does not test any intervention to reduce it.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 100 people

The number the study aims to enrol. It can still change while the study runs.

Started

Mar 2022

Expected to finish

Mar 2028

An estimate. End dates often move.

Lead sponsor

A research network

The lead sponsor is a research network or cooperative group.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Parents of children who are receiving induction chemotherapy for newly diagnosed ALL

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * All Children's Oncology Group (COG) NCI Community Oncology Research Program (National Cancer Institute \[N\]CORP) institutions are eligible for participation in this study upon first parent enrollment * Parents of an index child who meets the following characteristics are eligible for this study: * Index child must be newly diagnosed with de novo ALL * Index child must be between the ages of 1 and 14.9 years at the time of the parent's enrollment * At the parent's entry to the study, the index child must be receiving induction chemotherapy for newly diagnosed ALL at the enrolling institution. The index child may be enrolled in therapeutic clinical ALL trials or receiving ALL therapy per standard of care * Parents age 18 years and above are eligible for this study * Parent must speak English or Spanish in order to participate in the consent process and provide consent. The parent's language skills must be sufficient to understand the study requirements and complete the survey and interview questions * At the parent's entry to the study, the index child must be receiving induction chemotherapy for newly diagnosed ALL at the enrolling institution. The index child may be enrolled in therapeutic clinical ALL trials or receiving ALL therapy per standard of care * REGULATORY REQUIREMENTS: All parents must sign a written informed consent for their participation in the study * REGULATORY REQUIREMENTS: All institutional and NCI requirements for human studies must be met Exclusion Criteria: * Parents of index children with any of the following clinical characteristics will be excluded from the study: * KMT2A-R (formerly MLL-R) not receiving ALL therapy * Mixed-phenotype acute leukemia (MPAL) not receiving ALL therapy * Burkitt's leukemia

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Conditions

The condition(s) this trial relates to.

acute lymphoblastic leukemia Precursor Cell Lymphoblastic Leukemia-Lymphoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Acute lymphoblastic leukemia

Contacts and locations

Locations

  • Alfred I duPont Hospital for Children

    Wilmington, Delaware, 19803, United States

  • Alliance for Childhood Diseases/Cure 4 the Kids Foundation

    Las Vegas, Nevada, 89135, United States

  • Augusta University Medical Center

    Augusta, Georgia, 30912, United States

  • BI-LO Charities Children's Cancer Center

    Greenville, South Carolina, 29605, United States

  • Blank Children's Hospital

    Des Moines, Iowa, 50309, United States

  • Bronson Methodist Hospital

    Kalamazoo, Michigan, 49007, United States

  • Broward Health Medical Center

    Fort Lauderdale, Florida, 33316, United States

  • Children's Hospital New Orleans

    New Orleans, Louisiana, 70118, United States

  • Corewell Health Grand Rapids Hospitals - Helen DeVos Children's Hospital

    Grand Rapids, Michigan, 49503, United States

  • Dell Children's Medical Center of Central Texas

    Austin, Texas, 78723, United States

  • Driscoll Children's Hospital

    Corpus Christi, Texas, 78411, United States

  • El Paso Children's Hospital

    El Paso, Texas, 79905, United States

  • Geisinger Medical Center

    Danville, Pennsylvania, 17822, United States

  • Golisano Children's Hospital of Southwest Florida

    Fort Myers, Florida, 33908, United States

  • Kaiser Permanente-Oakland

    Oakland, California, 94611, United States

  • Kapiolani Medical Center for Women and Children

    Honolulu, Hawaii, 96826, United States

  • Maine Children's Cancer Program

    Scarborough, Maine, 04074, United States

  • Memorial Regional Hospital/Joe DiMaggio Children's Hospital

    Hollywood, Florida, 33021, United States

  • Mercy Hospital Saint Louis

    St Louis, Missouri, 63141, United States

  • Methodist Children's Hospital of South Texas

    San Antonio, Texas, 78229, United States

  • Montefiore Medical Center - Moses Campus

    The Bronx, New York, 10467, United States

  • Morristown Medical Center

    Morristown, New Jersey, 07960, United States

  • NYP/Columbia University Medical Center/Herbert Irving Comprehensive Cancer Center

    New York, New York, 10032, United States

  • Nemours Children's Clinic-Jacksonville

    Jacksonville, Florida, 32207, United States

  • Nemours Children's Hospital

    Orlando, Florida, 32827, United States

  • Ochsner Medical Center Jefferson

    New Orleans, Louisiana, 70121, United States

  • Prisma Health Richland Hospital

    Columbia, South Carolina, 29203, United States

  • Renown Regional Medical Center

    Reno, Nevada, 89502, United States

  • Sacred Heart Hospital

    Pensacola, Florida, 32504, United States

  • Saint Joseph's Hospital/Children's Hospital-Tampa

    Tampa, Florida, 33607, United States

  • Saint Vincent Hospital Cancer Center Green Bay

    Green Bay, Wisconsin, 54301, United States

  • Sanford Broadway Medical Center

    Fargo, North Dakota, 58122, United States

  • Sanford USD Medical Center - Sioux Falls

    Sioux Falls, South Dakota, 57117-5134, United States

  • Summerlin Hospital Medical Center

    Las Vegas, Nevada, 89144, United States

  • Sunrise Hospital and Medical Center

    Las Vegas, Nevada, 89109, United States

  • Tampa General Hospital

    Tampa, Florida, 33606, United States

  • University Medical Center of Southern Nevada

    Las Vegas, Nevada, 89102, United States

  • University Pediatric Hospital

    San Juan, 00926, Puerto Rico

  • University of New Mexico Cancer Center

    Albuquerque, New Mexico, 87106, United States

  • VCU Massey Comprehensive Cancer Center

    Richmond, Virginia, 23298, United States

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