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New hope for babies with severe epilepsy: early access to fenfluramine

NCT ID NCT06598449

First seen May 17, 2026 · Last updated May 24, 2026 · Updated 2 times

Summary

This study looks at whether fenfluramine, a drug already approved for children 2 and older with Dravet syndrome, is safe for children under 2 years old. Dravet syndrome causes severe seizures starting in the first year of life. The study will enroll 5 children aged 12 to 23 months and monitor them for side effects. The goal is to provide early access to a treatment that may reduce seizures.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Children's Hospital Colorado

    RECRUITING

    Aurora, Colorado, 80045, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.