How do families cope with a rare disease? new study asks caregivers
NCT ID NCT04917146
First seen Nov 01, 2025 · Last updated Apr 29, 2026 · Updated 24 times
Summary
This study looked at the experiences of 50 family caregivers of people with systemic sclerosis, a rare chronic disease. Researchers used questionnaires to understand caregivers' quality of life, health, and relationship with the patient. The goal is to learn how to better support these caregivers in the future.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Locations
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Rhumatology Service
Paris, 75014, France
Conditions
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