Rare disease Families' hidden struggles revealed in new study
NCT ID NCT07497581
First seen Mar 30, 2026 · Last updated May 17, 2026 · Updated 5 times
Summary
This study looks at how children with rare diseases and their families adjust emotionally over time. Researchers will ask 240 families to fill out online surveys and track daily feelings for a year. The goal is to understand what helps or hurts mental health and quality of life, so better support can be offered.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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University Children's Hospital Zurich
Zurich, 8008, Switzerland
Conditions
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