Global quest to map rare nerve disease progression
NCT ID NCT03920774
Summary
This study aims to learn more about familial dysautonomia, a rare inherited nerve disorder, by observing 400 patients over time. Researchers will collect health information and optional blood samples to track how the disease changes and develops. The goal is to gather detailed knowledge to help design better future treatments and improve care.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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Dysautonomia Center - School of Medicine -NYU Langone Medical Center
RECRUITINGNew York, New York, 10016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Email: •••••@•••••
Contact
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Sheba Medical Center - Safra Children's Hospital
RECRUITINGTel Litwinsky, Ramat Gan, 52621, Israel
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.