Global quest to map a rare nerve disease
NCT ID NCT03920774
Summary
This study aims to learn more about familial dysautonomia, a rare inherited nerve disorder, by observing 400 patients over time. Researchers will collect health information and optional blood samples to track how the disease changes and to find better ways to measure it. The goal is to gather knowledge that will help design future treatment trials, but this study itself does not test any new treatments.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for FAMILIAL DYSAUTONOMIA (RILEY-DAY SYNDROME) are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Email: •••••@•••••
Locations
-
Dysautonomia Center - School of Medicine -NYU Langone Medical Center
RECRUITINGNew York, New York, 10016, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Email: •••••@•••••
Contact
-
Sheba Medical Center - Safra Children's Hospital
RECRUITINGTel Litwinsky, Ramat Gan, 52621, Israel
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.