New study aims to unlock secrets of rare nerve disease
NCT ID NCT03920774
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study follows people with familial dysautonomia (FD) to learn how the disease changes over time. Researchers will collect routine medical test results and optional blood samples to find biological markers that could help diagnose and treat FD better. The study is observational, meaning no new treatments are tested, and participation involves minimal risk.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Dysautonomia Center - School of Medicine -NYU Langone Medical Center
RECRUITINGNew York, New York, 10016, United States
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Sheba Medical Center - Safra Children's Hospital
RECRUITINGTel Litwinsky, Ramat Gan, 52621, Israel