New registry aims to track Real-World impact of muscular dystrophy treatments
NCT ID NCT07402122
First seen Feb 12, 2026 · Last updated May 23, 2026 · Updated 15 times
Summary
This study creates a registry (a detailed database) for people with Duchenne or Becker muscular dystrophy, including symptomatic female carriers. The goal is to collect information on health, quality of life, and how new treatments work in everyday care. Up to 1,500 participants from German-speaking countries will use an app to report their well-being, helping doctors and researchers improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Universitätsklinik Heidelberg, Zentrum für Kinder- und Jugendmedizin
Heidelberg, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Universitätsklinikum Essen Klinik für Kinderheilkunde I
Essen, Germany
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
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