Russian fabry patients monitored in enzyme therapy study
NCT ID NCT06880250
First seen Jan 08, 2026 · Last updated May 19, 2026 · Updated 21 times
Summary
This study follows 100 people with Fabry disease who are already receiving enzyme replacement therapy as part of their regular care. Researchers will collect data from routine doctor visits to see how the treatment affects key health markers like kidney function and pain levels. The goal is to better understand how well the therapy works in real-world settings.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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#10
Krasnodar, Russia
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#11
Ufa, Russia
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#12
Ivanovo, Russia
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#13
Astrakhan, Russia
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#15
Orenburg, Russia
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#16
Gubkin, Russia
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#17
Omsk, Russia
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#18
Kurgan, Russia
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#19
Kaa-Khem, Russia
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#2
Rostov-on-Don, Russia
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#21
Grozny, Russia
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#22
Stavropol, Russia
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#23
Polevskoy, Russia
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#24
Ryazan, Russia
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#26
Irkutsk, Russia
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#27
Barnaul, Russia
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#3
Simferopol, Russia
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#4
Rostov-on-Don, Russia
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#5
Voronezh, Russia
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#6
Chelyabinsk, Russia
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#7
Borovichi, Russia
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#8
Saint Petersburg, Russia
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#9
Perm, Russia
Conditions
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