Russian fabry patients monitored in new enzyme therapy study
NCT ID NCT06880250
First seen Jan 08, 2026 · Last updated May 16, 2026 · Updated 20 times
Summary
This study watches 100 people with Fabry disease who are already receiving enzyme replacement therapy as part of their regular care. Researchers will track changes in key markers like lyso-Gb3 levels, kidney function, and nerve pain over time. The goal is to understand how well the treatment works in real-world settings.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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#10
Krasnodar, Russia
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#11
Ufa, Russia
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#12
Ivanovo, Russia
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#13
Astrakhan, Russia
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#15
Orenburg, Russia
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#16
Gubkin, Russia
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#17
Omsk, Russia
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#18
Kurgan, Russia
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#19
Kaa-Khem, Russia
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#2
Rostov-on-Don, Russia
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#21
Grozny, Russia
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#22
Stavropol, Russia
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#23
Polevskoy, Russia
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#24
Ryazan, Russia
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#26
Irkutsk, Russia
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#27
Barnaul, Russia
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#3
Simferopol, Russia
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#4
Rostov-on-Don, Russia
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#5
Voronezh, Russia
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#6
Chelyabinsk, Russia
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#7
Borovichi, Russia
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#8
Saint Petersburg, Russia
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#9
Perm, Russia
Conditions
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