Doctors track Real-World results of fabry disease treatments
NCT ID NCT06880250
Summary
This study aims to understand how well enzyme replacement therapy works for people living with Fabry disease in Russia. Researchers will observe 100 patients who are already receiving one of three approved enzyme therapies as part of their regular care. They will collect data on patients' pain levels, kidney function, heart health, and a key blood marker over 6 to 18 months to see how the treatments perform in real-world use.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for FABRY DISEASE are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Locations
-
#10
Krasnodar, Russia
-
#11
Ufa, Russia
-
#12
Ivanovo, Russia
-
#13
Astrakhan, Russia
-
#15
Orenburg, Russia
-
#16
Gubkin, Russia
-
#17
Omsk, Russia
-
#18
Kurgan, Russia
-
#19
Kaa-Khem, Russia
-
#2
Rostov-on-Don, Russia
-
#21
Grozny, Russia
-
#22
Stavropol, Russia
-
#23
Polevskoy, Russia
-
#24
Ryazan, Russia
-
#26
Irkutsk, Russia
-
#27
Barnaul, Russia
-
#3
Simferopol, Russia
-
#4
Rostov-on-Don, Russia
-
#5
Voronezh, Russia
-
#6
Chelyabinsk, Russia
-
#7
Borovichi, Russia
-
#8
Saint Petersburg, Russia
-
#9
Perm, Russia
Conditions
Explore the condition pages connected to this study.