Global team launches major effort to unlock secrets of Ultra-Rare cancer
NCT ID NCT06408441
Summary
This study is creating a large international registry to collect information on patients with a very rare cancer called Epithelioid Hemangioendothelioma (EHE). It aims to understand how the disease behaves over time, identify factors that predict outcomes, and see how well current treatments work. The registry will follow about 100 newly diagnosed adult patients from expert centers across Europe and the UK for up to ten years.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
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Contact
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Locations
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Aarhus University Hospital
RECRUITINGAarhus, Aarhus, 8200, Denmark
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Azienda Ospedaliera Universitaria San Luigi Gonzaga
RECRUITINGOrbassano, Torino, 10043, Italy
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Azienda Ospedaliero Universitaria Careggi
RECRUITINGCareggi, Firenze, 50134, Italy
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Campus Großhadern
NOT_YET_RECRUITINGMünchen, Germany
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Centre Oscar Lambret
NOT_YET_RECRUITINGLille, France
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Essen University Hospital
RECRUITINGEssen, Hesse, 45147, Germany
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Fondazione IRCCS Istituto Nazionale dei Tumori
RECRUITINGMilan, Milan, 20133, Italy
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Hospital Universitario Fundación Jiménez Díaz
RECRUITINGMadrid, Madrid, 28040, Spain
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IRCCS Istituto Clinica Humanitas
RECRUITINGRozzano, Milano, 20089, Italy
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Instituto Português Oncologia do Porto Francisco Gentil
NOT_YET_RECRUITINGPorto, Portugal
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Istituto Nazionale dei Tumori Regina Elena
RECRUITINGRoma, Roma, 00144, Italy
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Istituto Oncologico Veneto
RECRUITINGPadova, Padova, 35128, Italy
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Istituto Ortopedico Rizzoli
RECRUITINGBologna, Bologna, 40136, Italy
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Léon Bérard Center
RECRUITINGLyon, Lyon, 69008, France
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Maria Skłodowska-Curie Institute of Oncology
RECRUITINGWarsaw, Warsaw, 00-001, Poland
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Nuovo Ospedale di Prato "S.Stefano"
RECRUITINGPrato, Prato, 59100, Italy
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Policlinico Universitario P. Giaccone
RECRUITINGPalermo, Palermo, 90127, Italy
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Sahlgrenska University Hospital
RECRUITINGGothenburg, Göteborg, 413 45, Sweden
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The Royal Marsden Hospital
RECRUITINGLondon, London, SW3 6JJ, United Kingdom
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University Hospital Graz
RECRUITINGGraz, Graz, 8036, Austria
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Università Campus Bio-Medico
RECRUITINGRoma, Roma, 00128, Italy
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Vall d'Hebron University Hospital
RECRUITINGBarcelona, Barcelona, 08035, Spain
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Conditions
Explore the condition pages connected to this study.