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Epilepsy stigma survey reveals hidden struggles in school, work, and social life

NCT ID NCT07449871

Knowledge-focused Sponsor: Saglik Bilimleri Universitesi Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This completed study surveyed 90 adults with epilepsy to explore the stigma, misconceptions, and barriers they face in education, employment, and social settings. Participants filled out questionnaires designed by the research team. The goal is to identify unmet needs and inform ways to better support people living with epilepsy.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this study could highlight unmet needs and guide better support programs to improve quality of life for people with epilepsy.
What could go wrong
This is an observational survey with only 90 participants, so findings may not apply to everyone with epilepsy. It does not test any treatment.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

90 people

The number who actually took part.

Started

Feb 2026

Finished

Apr 2026

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Adults with a clinical diagnosis of epilepsy who are under follow-up at a tertiary neurology clinic will be invited to participate. The study population consists of individuals receiving routine clinical care who are able to complete structured questionnaires assessing educational, occupational, and social experiences related to living with epilepsy. Participants are expected to represent a broad range of demographic and clinical characteristics reflective of real-world epilepsy care.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Inclusion Criteria Adults aged 18 years or older Clinical diagnosis of epilepsy confirmed by a neurologist Able to understand and complete the questionnaire Willing to provide informed consent Exclusion Criteria: * Severe cognitive impairment preventing reliable questionnaire completion Acute medical or psychiatric condition interfering with participation Inability to communicate effectively in the study language

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Conditions

The condition(s) this trial relates to.

epilepsy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Epilepsy

Contacts and locations

Locations

  • Saglik Bilimleri University Izmir Faculty of Medicine Department of Neurology

    Izmir, Turkey (Türkiye)

More trials for these conditions

Other studies related to the condition(s) this trial covers.