Massive data hunt launched to solve mystery of connective tissue disease
NCT ID NCT04133272
Summary
This study is creating a large database to collect detailed health information from people with Ehlers-Danlos Syndrome (EDS). It aims to gather data on symptoms, treatments, surgeries, genetics, and quality of life from up to 3,000 participants. By linking all this information, researchers hope to better understand how the disease works, progresses, and differs between people.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for EHLERS-DANLOS SYNDROME are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Irccs Istituto Ortopedico Rizzoli
RECRUITINGBologna, Emilia-Romagna, 40136, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.