New national registry launches to map the journey of muscular dystrophy patients
NCT ID NCT07402122
Summary
This study is creating a national patient registry for people with Duchenne or Becker muscular dystrophy. It aims to collect health data from up to 1500 participants to better understand the diseases and monitor how new treatments work in everyday life. The goal is to use this information to improve future care and treatment standards across German-speaking countries.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Universitätsklinik Heidelberg, Zentrum für Kinder- und Jugendmedizin
Heidelberg, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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Universitätsklinikum Essen Klinik für Kinderheilkunde I
Essen, Germany
Contact Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
Conditions
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