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Scientists watch rare DNA disorders in action

NCT ID NCT05484570

First seen Nov 01, 2025 · Last updated May 20, 2026 · Updated 31 times

Summary

This study follows 40 people with rare DNA repair disorders like Cockayne syndrome, xeroderma pigmentosum, and trichothiodystrophy. Researchers will measure movement, balance, and other health changes over time to better understand how these conditions progress. No new treatments are being tested—the goal is to learn more about the diseases.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

Locations

  • University of Minnesota- Twin Cities

    RECRUITING

    Minneapolis, Minnesota, 55455, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.